Thanks for the "I love xavier242" thread!

[xavier242]

Why I'm stepping down from Primary Admin. My health issues:

My doctors have not been able to give me a prognosis. Because my condition is so rare, they have nothing to base a prognosis on. Due to a rare complication of an ischemic stroke I suffered in 2017, I'm bleeding internally from an artery in my chest.

The day of the stroke, I clearly felt a clot go into an artery near my sternum, move a little every few minutes, and after moving about 3 inches, the artery ruptured at the clot. No doctor or nurse believed me. 3 weeks later it clotted, but began bleeding again on March 22, 2024 and hasn't stopped.

My prior PCP tried to get exploratory surgery done in 2017 but my insurance company would not approve it because they said my incident was impossible. My new PCP researched it and found such a rupture is possible. The Mayo Clinic triage specialist I spoke with confirmed it as well.

I searched internal bleeding artery and the best I can determine is I may have only a few weeks left without surgery. No local ER or hospital will do a simple test (paracentesis) to confirm I'm telling the truth. I now have pronounced uneven physical distention from my abdomen. My right lung is collapsing. I have severe shortness of breath. I feel the bleeding, pressure, burning, and pain all the time now.

I'm trying to get an appointment at the Mayo Clinic, Jacksonville, FL. I spoke with them and sent various tests and a detailed summary to them. I'm waiting to hear back. Hopefully they can help me.

If anyone has an advanced research Hospital in their city like the Mayo Clinic that may be able to help me, please send me a PM.

And hopefully someone can take my "TTD reimagined research and ideas" and run with them.

Thanks for the "I love xavier242" thread! I still have no idea what it's about.

[Orangeboy]

Damn. Take care of yourself!

[Gwonam]

Oof. Best wishes.

[Nadiar]

Best wishes for the future. N

[joujoujou]

Jaysus, that's scary.

Get well soon!

[wzbw88]

All the best and thanks for your past efforts to keep the site alive!

[Squid_Vicious]

Best wishes and thanks for your efforts

[daddyray]

PM me I know someone at Mayo but you messages are full.

[xavier242]

Originally Posted by daddyray

PM me I know someone at Mayo but you messages are full.

Thanks, I was able to get an appointment with a doctor there in November. They will get me in sooner if possible.

I need to get or borrow an infrared camera as everywhere the liquid has pooled is cool when touched. There would be no blood vessels in pooled liquid, so logically I would think those regions would be cooler. My entire belly, lower right back, and right side feels cool.

[astanley]

Mayo is the best. They've kept my mother alive for twice her expected longevity for a weird disease. Keep working with them! Leverage their network. If you can't get into Jacksonville right away, try another location (if you can afford to travel). Thanks for all of your hard work and good luck!

[echnaton]

I wish you all the best, xavier!

Many thanks for your support!

[thesabman]

So sorry to hear of your health issues Xavier. Best of luck to you & may God Bless You.

[RAT1]

All the best, thanx for all these years

[sidewindersf]

Very sorry to hear of your illness and looking forward to your full recovery!

[archive50]

My goodness. I had no idea about this until somebody mentioned that the site would probably be closing down again. I pray that you're able to get some Swift medical assistance. How
Generous of you to take on the site when you had this going on. Again, I wish you the best and thank you for all you have done.